When you first discover your child suffers with AADC Deficiency, some or all of the following emotions will be experienced:

IMMEDIATE

Shock
Sorrow
Disbelief
Anger
Despair
Desperation
Powerlessness

As you discover more about your child’s disease and as you come to terms with the extent of the long term care which will be needed, you may experience the following emotions.

LONG TERM

Isolation
Devastation
Helplessness
Chronic Grief
Some Normalisation
Adjustment to Chronic Lifestyle

It is important to join parent support groups where you can share your experiences with families in similar situations.