#oneRAREstep Campaign...
'#oneRAREstep to save a life' is our current Campaign, comprising of several focused fundraising events and activities aimed at financing the AAV2-hAADC Gene Therapy treatment for AADCd children worldwide.
For more information on each event please click on the links below...
If you would like to participate or
volunteer for any of these events please contact:
Julie Ramsay (Charity Manager) julie@aadcresearch.org
Gene Therapy Journey's
Here is a selection of some of the AADCd children who have received AAV2-hAADC Gene Therapy and their stories so far...
How to get involved...
JustGiving...
You can donate via our #oneRAREstep JustGiving main campaign page or, if there is a particular AADCd effected child that you would like to support, please select their individual personal appeals.
Social Media...
For more information and updates on the Campaign please follow us on our Social Media platforms...
Disclaimer: The AADC Trust reserves the right that in the event it successfully raises the required funds or acquires government funds from the country where a child resides, to cover the treatment we will use any surplus funds raised from their personal page to assist with their off treatment costs such as travel and accommodation. Any remaining funds will be used by the Trust for the purpose of this Campaign, including distributing them to other children registered for the treatment.