I initially became involved during the charity’s early infancy after seeing the dramatic effect the disease was having upon Jake & his family, taking up the challenge to fundraise for the PND Association. This included several sponsored London to Brighton cycle rides & other events.
When Lisa set up the AADC Research Trust in 2006 I was invited to join as a non-affected director. Since then the challenges have not stopped including helping to set up two charity shops & tea room where my skills as a Building Surveyor were put to full use in the fitting out & dealing with statutory issues such as Planning and Health & Safety.
As the numbers of children being diagnosed with AADC across the world is continually increasing as a result of the relentless research funded by the charity, the fundraising has become even more important & challenging.
I hope to continue to assist as long as I am able & capable to make a contribution to this very worthy cause which endeavours to win the battle against this devastating disease & help the affected children & their families.