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#CureAADCd
in support of The AADC Research Trust

Meet The Team

Lisa Flint

Founder / Managing Director

It took 300 medical appointments to get a correct diagnosis for Lisa and Tony's son Jake. He suffered from the ultra rare brain disease Aromatic Amino Acid Decarboxylase deficiency. Once they had a confrimed diagnosis their rare disease journey began ...

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Tony Flint

Founder / Director

It took 300 medical appointments to get a correct diagnosis for Lisa and Tony's son Jake. He suffered from the ultra rare brain disease Aromatic Amino Acid Decarboxylase deficiency. Once they had a confrimed diagnosis their rare disease journey began ...

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Jacqui Jeffries

Founder / Director

The AADC Research Trust is very close to Jacqui's heart as Jake is her nephew. She has helped raise funds for the charity by not only volunteering in charity shops, but also doing many sponsored events such as sky diving ...

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Brian Jeffries

Founder / Director

Brian is Jake's uncle and has supported the charity since it's inception, in many ways. He helped set up our various charity shops and tea room. He has also participated in many fundraisers for the charity including the London to Brighton bike ride ...

Julie Ramsay

Charity Manager

Julie joined the charity over six years ago. She has organised and participated in many fundraising events & driven rare disease awareness to ensure the charity continues to support AADCd children and their families through patient advocacy ...

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Professor Simon Heales

Founder / Medical & Scientific Director

Professor Simon Heales is the Chair of Clinical Chemistry & Head of Chemical Pathology at GOSH & the Neurometabolic Unit based at The National Hospital. Simon was part of the original team who diagnosed the very first children with AADCd in 1989 ...

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Ross Moat

Pharmaceutical Consultant Advisor

Ross joined the charity in a voluntary capacity as Consultant Advisor to the Board of Trustees. He brings with him over fifteen years of experience in commercial and business development in biotech and pharmaceuticals in Europe ...