Meet The Team

Tony Flint

Founder / Director

It took 300 medical appointments to get a correct diagnosis for Lisa and Tony's son Jake. He suffered from the ultra rare brain disease Aromatic Amino Acid Decarboxylase deficiency. Once they had a confrimed diagnosis their rare disease journey began ...

Julie Ramsay

Charity Manager

Julie joined the charity over six years ago. She has organised and participated in many fundraising events & driven rare disease awareness to ensure the charity continues to support AADCd children and their families through patient advocacy  ...