Rare Disease Day : 28th February 2021


This year’s awareness campaign is almost here, with just 6 days to go!


All week we will be sharing some of the Rare Disease Day posts on our social media platforms, to highlight the annual event, as it brings together millions worldwide in solidarity with those living with a rare disease.


The Rare Disease Day video is a beautiful short film, represented by Angelina, Syafiq, Regina, Tristan, Jon-Kristian and Harvey.


Six continents, six portraits, six heroes, six lives ...

By sharing their stories, it’s shining the light on the global and diverse community of over 300 million people living with a rare disease and their families.

The AADC Trust is proud to be a part of that incredible community, with our amazing AADCd children and their families.


For more information about the day please visit the Rare Disease Day website:



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To contact us please email via: enquiries@aadcresearch.org and we will endeavour to reply to you as soon as possible. We apologise in advance for any delays in our response, during this time. Our staff are on furlough and working from home. Please bear with us. Thank you for your patience.


The AADC Research Trust

Soper Hall, 2 Harestone Valley Road,

Caterham, Surrey, CR3 6HY

Registered Charity

UK & Wales No: 1114367

© AADC Research Trust