These are some of our current fundraising activities. Please show your support by clicking on the links provided and donating to help raise funds for AADCd.
Run For The Girls 2019
Run For The Girls is a 5k event to support Girl Power, empowering women - moms, daughters, family and friends to run or walk together in support of fitness and strong girls! On Saturday, May, 11th, 2019 women and girls will run/ walk/ scooter/ bike or stroller around the Clarkson/ Lorne Park neighbourhood, in Canada!
Funds raised from this event will go to support the AADC Research Trust.
Shillann and Rian will be taking part in this event. Please show them your support.
The Cotswold Way Challenge 2019
Please support Jasmine Mclennan, a member of the wonderful First Choice Conference & Events team. Jasmine is taking part in The Cotswold Way Challenge this year on the 29th June to raise funds for the AADC Trust! It's a whopping 60 mile (100km) trek from Bath to Cheltenham! We are all wishing you the very best of luck Jasmine! Thank you.
You can sponsor Jasmine by making a donation on her Just Giving Page:
Thank you to Boston and his family for raising $1273.00
by holding the "Ten Thousand things" T-shirt Fundraiser.
St James Place Wealth Management
St. James Place Charitable Foundation have very generously donated to The AADC Trust this year.
Thank you to Oscar's grandmother, who did a Card Sale and raised 300 Euros!
The amazing Shillann Rodriguez-Pena, lovely Rian's mum
held a Bottle Drive Fundraiser and raised an incredible $6014.45
The Irai Association in Spain raised £5000 and donated it to The AADC Trust.
Hillside Public School
Rian's school, Hillside Public School, did a fundraising event where they sold items and raised an huge
The Romain Association in France raised 5000 Euros and donated it to The AADC Trust
Jaime's Hairy Challenge!
Luiz Durham is the owner of Kronik Warrior Aromatherapy. She is a friend of our lovely Torben and his family. Luiz has done a great deal to help raise awareness and funds for the AADC Trust. This time she has enlisted the aid of Jaime.
To support AADC Jaime has taken on a very Hairy Challenge! He has shaved all of his hair and beard off and will grow it for a whole year! Throughout the year he will be letting Luiz create some fun styles and dye it some funky colours!
To follow the story please visit Kronik Warrior Aromatherapy's Facebook Page:
Bath Half Marathon
Sven Grove is participating in the Bath Half Marathon on 17th March 2019. It's a massive 13.1 miles (21.1km) run through the World Heritage City of Bath. Sven's son Ted suffers from AADCd and he is one of our little heroes! We are all wishing you the very best of luck Sven. Thank you!
You can sponsor Sven by making a donation on his Just Giving Page:
Zellis Fun Day
Zellis, the UK's largest payroll provider, is holding a charity day to raise money for The AADC Tust. Organised by employees with personal experience of the impact of AADC, a number of offices in the UK will be participating in cake sales, team quizzes, raffles not to mention the 'arm hair auction' all designed to raise money and have some fun. The teams will also show their support by buying and wearing blue wrist bands. Thank you Zellis!
For more information about Zellis you can visit their website :
#aRAREgift Just Giving Campaign
Please help us continue with our important work to raise awareness and provide AADCd children a chance of life #aRAREgift
Every day on the main campaign page, between Valentines Day (14th Feb) and Rare Disease Day (28th Feb) the AADC Trust will share pages from their children's AADC story book with you, highlighting in the simplest of ways how AADCd affects our community. We desperately need your help, please share this page far and wide and donate JUST £2 (all currency accepted).
Ours is a deadly disease. In 2018 we lost 10 children/young adults to the ULTRA-RARE disease Aromatic Amino Acid Decarboxylase deficiency (AADCd) = to 7% of the world population, spanning 30 countries. Before 2018 we lost at least 3 children each year to AADCd.
Your help is vital to ensuring we can continue with our work and enable us to develop the ultimate cure for our children #aRAREgift ... Thank you so much for taking the time to follow our story and donating.
Sponsorship Forms/Collection Pots:
If you would like to help by raising awareness or participating in a sponsored event, please email us at:
We would love to hear from you and offer any support we can. The AADC Trust can supply you with Sponsorship Forms and Collection Pots. All we need is your name and address and details of your fundraising activity.