About Us

The AADC Research Trust

Welcome to The AADC Research Trust, a Charity Organisation dedicated to helping children and their families, around the World, affected by Aromatic Amino Acid Decarboxylase Deficiency (AADCd).

AADCd is a genetically inherited neurological disorder affecting the brains ability to produce neurotransmitters, dopamine and serotonin. These are two of the most essential neurotransmitters needed for every day living! (more detailed information can be found under ‘About AADC’)


The AADC Research Trust...

  • helps support children with Aromatic Amino Acid Decarboxylase Deficiency (AADCd)

  • promotes worldwide disease awareness

  • funds scientific research

We currently know of 150 -200 children, spanning 30 different countries who have been correctly diagnosed with AADC deficiency. It has proved fatal to many of those children.

A message from Lisa Flint

AADC Managing Director

"The love of your child is the most precious gift in the world.  When that child’s life is so cruelly jeopardised, you learn to cherish every moment of every day and live in hope that one day soon, someone, somewhere, somehow will find a cure."

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To contact us please email via: enquiries@aadcresearch.org and we will endeavour to reply to you as soon as possible. We apologise in advance for any delays in our response, during this time. Our staff are on furlough and working from home. Please bear with us. Thank you for your patience.


The AADC Research Trust

Soper Hall, 2 Harestone Valley Road,

Caterham, Surrey, CR3 6HY

Registered Charity

UK & Wales No: 1114367

© AADC Research Trust