Meet Rian ...
Mum, Shillann, says "this was the day that my daughter was reborn".
She gained head control, using her hands, eating independently, drinking, sitting independently, standing, playing ... Rian entered a whole new world.
This is a truly inspirational story told by Shillann, mum of Rian who has AADCd.
Rian received gene therapy in September 2019 at the Brodno Hospital in Poland, under the care of Professor Bankiewicz and his team.