Columbus Children's Foundation
The Columbus Children's Foundation isa non-profit organisation based in Valencia, Spain. It was created in 2017 by Javier Garcia Cogorro and Damia Tormo Carulla with the aim of facilitating access for children with rare diseases to the most advanced and effective therapies.
"We are conscious of the key role that innovation and new technologies play within the field of healthcare. In line with this vision, we accept the challenge of bringing these new technologies closer to those who most need them. The mission of the Columbus Children Foundation is to provide access to the most advanced therapies to children of lower resources, diagnosed with ultra-rare monogenic neurodegenerative diseases. Also, we aim to promote scientific innovation to obtain new and more effective treatments, contributing to the divulgation of the work of researchers and connecting the world of research with business. At the same time, we promote culture as a tool for personal development and social cohesion, while we raise funds that allow us to fulfil the previous objectives".
To date The Columbus Children's Foundation has generously funded 4 AADCd children ( 2 from Poland, 1 from Spain and 1 from the UK) to have the AAV2-hAADC Gene Therapy Treatment via Krystof Bankiewicz and Professor Miroslaw Zabek and the team at the Neurotherapy Center, Brodno Hospital, Poland.
They continue their efforts to ensure that, like us, families are not personally liable for this life saving treatment that their children deserve.
The Columbus Children's Foundation, Roger de Lauria, número 6, 6º A,46002, Valencia, Spain
Registered No 1930 Spanish ‘Registro de Fundaciones de competencia estatal,’
How to get involved...
You can donate via our #oneRAREstep JustGiving main campaign page or, if there is a particular AADCd effected child that you would like to support, please select their individual personal appeals.
Disclaimer: The AADC Trust reserves the right, that in the event it successfully raises the required funds or acquires government funds from the country where a child resides, to cover the treatment, it will use any surplus ,funds raised from their personal page to assist with their off treatment costs such as travel and accommodation. Any remaining funds will be used by the Trust for the purpose of this Campaign, including distributing them to other children registered for the treatment.