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#CureAADCd
in support of The AADC Research Trust

Old Globe

International Patient Organisation for the ultra RARE disease; Aromatic Amino Acid

Decarboxylase deficiency (AADCd)

Welcome to The AADC Research Trust

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About Us

The AADC Research Trust is an International Patient Advocacy Organisation, representing children suffering from the ultra rare brain disorder Aromatic Amino Acid Decarboxylase deficiency; AADCd. Read more about us & the critical work we do ...

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Latest News

The AADC Research Trust is working closely with NICE (National Institute for Health and Care Excellence) on the appraisal of eladocagene exuparvovec (Upstaza), for approved use in the UK ...

Lab Experiments

Research

Discover the incredible work we are doing to drive critical disease research, advance treatment strategies, improve the diagnostic odyssey with simplified testing & much more ...

Conferences & Webinars

Browse this section to view the many International AADCd Medical & Scientific Conferences held by The Trust. Watch our much anticipated AADCd Family Workshop videos with transcripts in several languages ...

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Gene Therapy

We are at the forefront of pioneering Gene Therapy treatments. Discover more about these incredible treatments, our involvement in driving them forward & follow the journeys of our AADCd children who have already had AAV2-AADC Gene Therapy ...

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AADCd Families

Everything you need to know as family of a child suffering from AADCd. Find out how to recognise signs & symptoms, what to do next, what support is available and much more ...

Caring Child

Get Involved

There are many ways you can get involved & support us as we continue to raise global awareness of this devastating disease. Find out how you can help us change the lives of our amazing AADCd warriors ...

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Contact Us

For all enquiries please email us at enquiries@aadcresearch.org

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